Update On Emmie

Update # 4

Emmie stayed home from school yesterday morning. She just could not lift her head off the pillow after having such a rough day and night the previous day. I checked her in by 10:00 because she wanted to go to her her volleyball game. After I dropped her off at school, I drove to the doctor's office to speak to her Ped. directly. I am so thankful that we have such a good relationship with her. Emmie has been put on a five day steroid treatment. MethyIPREDNISolone. So far, she has had no relief. Today will be day two. If I do not hear from the specialist by Thursday, I will call the doctor and let them know. Emmie keeps telling me that she thinks something is really wrong. That is the hardest part for me. We all know our bodies. Emmie is a very smart girl. So for her to tell me that, I believe it. Again, I am struggling this morning to get her up. She just holds her head. I do want to say thank you to all of you that have sent me emails or left comments. The info from many of you has been so helpful. Suggesting different med's or tests.....I really, really appreciate you sharing your experiences with me so at least I can go in with a list and ask some questions. I do have some cute pictures of Sophia's first day at preschool this week to share. I'll try and get that up by this weekend. Today is her second day. I'm sure many of you can guess how it went.......Miss Fia loves it. My little social butterfly. ;)

Hugs,

Steffie

Update # 3

We have had a very bad day here today. Emmie came home after school. Her coach took one look at her and gave her an excused absence from practice. She is miserable. We did get results back today. The CAT showed no issues with the brain, but it did show mild changes with her sinuses. We will be getting a call from a Sinus/Headache Specialist. In the meantime, I asked the nurse to get a message to Emmie's doctor that the Imitrex is not working. She has been in bed since she got home and keeps telling me something isn't right. I told her that migraines are h*ll, and that I understand that she feels like there is something terribly wrong. I just pray that it is really a migraine problem. I feel completely lost at what to do. Thank you so much for your constant concern and prayers.....she needs them and I tell her all the time how many people email me and ask how she is. I'll keep you posted. Currently, Sophia is in bed with her, rubbing her cheek and asking her if she is okay. It is the sweetest, most precious thing I have ever seen.

Hugs,

Steffie

So much for the sweetest thing....I went in Emmie's room to find that Sophia, in the darkened room, had found a dry erase marker....oh yes.... a black one......and she proceeded to draw all over Emmie's white end table, pink bed spread, bed skirt, brand new shorts, the wall, her VS bag and the kitty pillow. ~sigh~ I'm seeing another purchase from PB Teen happening this week. ~double sigh~

Update # 2

I'm not sure if the Imitrex is going to work for her or not. I gave her one before we went out last night. We ate dinner, and shortly after that she became very, very ill. She said she had not felt like this in a long time. Her whole body hurt, she felt like she was going to puke, her chest hurt and the slighest sound put her into pain. We got home as fast as we could and by 7PM, I had her back in bed. I kept looking at her in the car because she was so pale, but as long as her lips kept their color I knew she wasn't passing out. A few of you have given me other medication options and I am very, very thankful for that. I will be calling the doctor again on Monday and I have a feeling Emmie will be going in again. I pray that we get results from this test by early week. The poor girl is suppose to get an expander put into her mouth again on Monday as well....we may need to re-think this. I'm not sure how much more physical pain she can take.

Medication Update:

They have given Emmie Imitrex and Tylenol with Codeine until we have results back from her CAT Scan. She did say she got some relief from the first round. She said the pain was still there, just not quite as intense. This morning I gave her another dosage. It is 2:30 in the afternoon and she is still sleeping in bed. She was too ill to march in the the parade this morning. ~sigh~ This worries me. I'll be getting her up soon. We are taking her to the movies and dinner tonight.

Emmie started High School this week and so far things have been good. Volleyball is going well, she had her first student council meeting and we hauled her in for her CAT Scan. That didn't go very well. I had kept the fact that they would need to put an IV in her because I knew that she would be a wreck all day long at school. I gave her a pill to calm her an hour before we left. When she realized that an IV was going to be done she went completely white, tears began to fill her eyes and that big bottom lip began to tremble. I knew she was scared. She buried her head in my shoulder as the nurse tried to get the needle in her arm with NO success. Emmie was crying, I had tears streaming down my face and then they decided to get the smallest needle they had and put it in the top of her hand. I thought she might physically get ill at this point......I felt horrible....once it was in her hand and taped down they moved her to the room to do the procedure. That took all of 5 minutes. I do not expect to hear results until next week. HOWEVER, the headaches have increasingly become worse over the last two weeks. I can tell every morning I wake her and after volleyball practice that she is just barely making it. I called her doctor today and asked for migraine medication. I will be going to get it today before I pick her up from practice. I don't know what they have called in yet, but I am just praying it will give her some relief. Here is the perfect example.....she gets home tonight and has less then an hour before she has to be back at the school to march for the game. No rest time at all. I know she is going to want to sleep at a friends house tonight and I am going to put my foot down and say NO....you are coming home after the game. Tomorrow morning she can't sleep in due to having to march in the Heritage Day parade for our town. ~sigh~ I just want my healthy girl back. Thank you for all the emails of concern and prayers sent up on her behalf. I appreciate it. Have a great weekend.....

Hugs,

Steffie

And yesterday marks 17 months we have been waiting for Baby O.